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Last Words

clock November 25, 2012 06:34 by author Lisa Bonsall, MSN, RN, CRNP

I’ve seen a lot of patients die. And by a lot, I mean too many to count. Some deaths I remember clearly, perhaps because the patient was alone or had a large number of family and friends at the bedside, perhaps because he or she was close to my age, or perhaps because of religious traditions that took place during or after the death. It’s odd then, that when I think back to last words of patients before they died, I am at a loss. 

It could be because many of our patients followed a similar pattern prior to their death. Many were on mechanical ventilation which was withdrawn after many days, weeks, or months of progresses and setbacks. Most were unresponsive, either due to sedation or their disease process. They may have spoken their last words in my presence, but at the time I may not have realized that they were the last words they would ever speak. 

I do remember the last words of one patient in our unit. She was my grandmother. After a fall with a resultant hip fracture, she was transferred to us several weeks after surgical repair of her hip. Her oxygen requirements were increasing and she was becoming more and more agitated. In our unit she was treated for aspiration pneumonia, given anxiolytics, and supported with more and more supplemental oxygen each day.

We, her family, knew her wishes – she didn’t want to be intubated – and we respected that. I was working night shift, not as her nurse, but would stay much of the morning to help with her am care and to be there for rounds. On one particular morning, she was coughing and vomited. She had a hard time catching her breath. I called out for her nurse to suction her, when my grandmother grabbed my hand and said “No more.” We spoke of what that meant; it was a pretty intense conversation for a young nurse to have with her own grandmother. Then I called the rest of the family to explain our conversation and ask that they come to be with us. 

Everyone arrived throughout the day and we did what we could to keep her comfortable. We all spent time holding her hand and chatting with her when she was able. At one point, my grandmother asked for a grape soda. I found one for her and as she sipped it through a straw, she said to me “Lisa, I won’t be at your wedding.” “I know,” I said, “Grandmom, but you will always be with me.” Her response was “Yes… and grandpop knows what to give you.”

And those were her last words to me. I knew that she was referring to a wedding gift, and I laugh now when I think about it, because that was typical of my grandmother. She was an incredibly generous woman…always fighting over the check at dinner and pushing to pay at any cash register. These final words make me smile and think of who she was, not laying on that hospital bed, but as my grandmother.

What made me think of this was a recent book I just completed. In Looking for Alaska by John Green, the main character has a fascination with last words. He reads countless biographies and has memorized last words, even making it his mission to discover the “Great Perhaps” mentioned in the last words of François Rabelais. It was a good read, definitely thought-provoking, and I thank my niece for recommending it to me.

As nurses, some of us work with dying patients on a daily basis, while others, only rarely or sometimes. Regardless of your experience, do any last words stand out in your memory?



A Special Thank You

clock November 23, 2011 02:27 by author Lisa Bonsall, MSN, RN, CRNP

When I started to think about a special post to write for Thanksgiving, I tried to remember a time when I really grew as a nurse. There was no question in my mind about a certain patient that was instrumental in that growth. The crazy thing was I never even knew her.

It started out like any other shift – I was assigned two patients (we were fully staffed), a wonderful leader and my former preceptor was our charge nurse for the evening, and a team of interns and residents who had been in our Medical Intensive Care Unit for a few weeks were working. All the beds were full and none of our patients were up for transfer out of the unit, so it seemed like we were in for a calm shift.

Linda was a young woman who had a uterine rupture during childbirth and had lost a lot of blood. She subsequently developed acute respiratory distress syndrome (ARDS) and had come to our unit about 2 weeks prior to this particular evening for intubation and management of her ARDS. She had no significant past medical history, no known allergies, and had an uncomplicated pregnancy with regular prenatal care.

During change-of-shift report, I learned from the day shift nurse that the MICU team had met with Linda’s family that day after a neurological exam and testing had revealed that Linda was brain dead. The family had decided to gather together this evening and we’d remove Linda from the ventilator. They had also requested to donate her organs.

A representative from Gift of Life arrived shortly after the start of my shift and the family started to drift in as well. Never had I been part of such an emotional patient experience. The strength and courage of the family of this young woman – this new mother – was incredible. While their grief was palpable in the room, so was their faith. They verbalized gratitude at being fortunate enough to be able to donate several of Linda’s organs and saw this as a way to continue her life.

So, this special thank you goes out to Linda and her family…

Thank you for allowing me to be part of that night.

Thank you for sharing your faith with me.

Thank you for sharing your stories with me.

Thank you for teaching me that death, even a tragic one, can give us strength that we might not even know is within us.  

Thank you for thinking of others and giving life. 



Decisions, decisions

clock April 14, 2011 10:02 by author Lisa Bonsall, MSN, RN, CRNP

Living wills. Life support. Do-Not-Resuscitate. These are all phrases that I used frequently working in an adult medical intensive care unit. I rarely had trouble using the words death, dying, hospice, or end-of-life with patients and families.

However, outside of the hospital, these words have been a lot harder for me. My parents do have living wills and have expressed their wishes to me, but not because I initiated any discussion with them. In fact, I’ve actually avoided those conversations despite knowing how important they are. 

There is not really a good time to have end-of-life discussions, so people tend to wait for the "right time" which often turns into the "wrong time" or "too late." The conversation might end up taking place in the hallway of the emergency department or in a critical care waiting room. Sometimes, information is conveyed and decisions are even made over the phone.

I am fortunate that my own family members have insisted on preparing for the end of their lives and sharing their plans and wishes with me. As a daughter, I really don’t like to hear about it. As a nurse, I know that this is a very good thing.

Saturday, April 16th is National Healthcare Decisions Day. Make this day the "right time" to talk with your loved ones and encourage the patients you care for to do the same.



More to think about at the end of life

clock July 11, 2010 19:19 by author Lisa Bonsall, MSN, RN, CRNP

Providing end-of-life care can be one of the most challenging responsibilities as a nurse, yet can also be one of the most fulfilling. When a patient’s wishes are respected and dying with dignity is a priority, death can be a peaceful and positive experience for the patient, his family, and the staff caring for him.

Oftentimes, our focus during end-of-life care is primarily on pain management and relieving or preventing labored breathing. Research published last month in the Archives of Internal Medicine calls attention to other factors that need to be addressed to improve care at the end of life. These include communication deficits, the importance of dyspnea assessments, implantable cardioverter/defibrillator deactivation, and bowel regimens.

In my opinion, the importance of communication at the end of life cannot be stressed enough. This includes communication among staff, among the patient and his family members, and between staff and the patient and his family. How many times have you encountered family members who didn’t agree with the wishes of a loved one as stated in his living will or who didn’t understand that an illness was terminal? How about physicians, nurses, and other professionals who were reluctant to address end-of-life issues?

It is important for all decision-makers and caregivers to understand and agree on a plan in order to ensure a positive experience at the end of life. For this to happen, communication is key. Take some time to read the following articles. You’ll find some great information to help educate patients, families, yourself, and your colleagues about end-of-life issues and care.



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