November 2003, Volume 33 Number 11 , p 20 - 22
© 2003 Lippincott Williams & Wilkins, Inc. Volume 33(11) November 2003 p 2022 On duty, 24/7 [INSIGHTS ON DEATH & DYING: CAREGIVER BURNOUT]
UFEMA, JOY RN, MS
Joy Ufema pioneered the role of death-and-dying specialist at Harrisburg (Pa.) Hospital in 1973. She's currently clinical specialist at Upper Chesapeake Medical Center in Bel Air, Md., and at Harford Memorial Hospital in Havre de Grace, Md.
I'm a home hospice nurse caring for a terminally ill woman whose daughter is the live-in caregiver. Until recently, I found the house tidy and the patient bathed and dressed in beautiful pajamas whenever I visited. But last week, the house looked dirty and the patient was unkempt. Even so, the patient smiled and said, Isn't my daughter an angel? I don't know what I'd do without her. When I glanced at the daughter, she abruptly ...