Source:

Nursing2015

November 2004, Volume 34 Number 11 , p 8 - 8 [FREE]

Author

  • CINDY HAMMOND RN

Abstract

 

Thanks to Susan Simmons Holcomb for her article on pulmonary arterial hypertension (PAH) in the September issue of Nursing2004. I'm a survivor of PAH, a silent, misunderstood disorder that most people, including nurses, just don't understand. I call it the "but you look so good" illness.

 

One point Ms. Holcomb should have addressed is financial assistance for patients who rely on epoprostenol (Flolan) or bosentan (Tracleer), expensive drugs that are way above most people's means. Also, patients need emotional support when they're trying to get on transplant lists and waiting for the call.

Thanks to Susan Simmons Holcomb for her article on pulmonary arterial hypertension (PAH) in the September issue of Nursing2004. I'm a survivor of PAH, a silent, misunderstood disorder that most people, including nurses, just don't understand. I call it the "but you look so good" illness.

 
Figure. No caption a... - Click to enlarge in new windowFigure. No caption available.

One point Ms. Holcomb should have addressed is financial assistance for patients who rely on epoprostenol (Flolan) or bosentan (Tracleer), expensive drugs that are way above most people's means. Also, patients need emotional support when they're trying to get on transplant lists and waiting for the call.