Keywords

follow-up registry methods, outcomes study, population surveillance, traumatic brain injury

 

Authors

  1. Pickelsimer, E. Elisabeth DA
  2. Selassie, Anbesaw W. DrPH
  3. Gu, Ja Kook MSPH
  4. Langlois, Jean A. MPH, ScD

Abstract

Objective: To describe the design and operations of the South Carolina Traumatic Brain Injury (TBI) Follow-up Registry.

 

Design: Statewide prospective cohort study.

 

Setting: State of South Carolina.

 

Participants: 2118 persons discharged from acute care hospitals after experiencing TBI.

 

Intervention: Telephone interviews.

 

Main Outcome Measures: Service needs, alcohol and drug use, psychosocial health, health-related quality of life, functional status, symptoms of TBI, employment, global life satisfaction, and death.

 

Results: Selected initial and 1-year follow-up findings concerning demographic, insurance status, income, and employment factors.

 

Conclusions: Population-based outcome studies that describe longer term problems associated with TBI, the need for services, and estimated disability could be useful to inform public policy.