NEW Health Information Technology: Ethical Perspectives of the Personal Health Record
Patricia R. McCartney PhD, RNC, FAAN

$3.95 		MCN, The American Journal of Maternal/Child Nursing
June 2011 
Volume 36  Number 3
Pages 201 - 201
 
  PDF Version Available!

ABSTRACT
The patient-controlled personal health record is a key component of the Health Information Technology (HIT) agenda, and its use has clear ethical implications for healthcare providers and for patients. Teams of healthcare professionals, healthcare organizations, vendors, and government agencies are currently developing standards and technology for private and secure health data transfer among interoperable networks. Although all parties acknowledge their ethical duty to protect privacy, we don't know whether patients know or believe that their privacy is protected in a personal health record. Are patients prepared to learn how to control their own personal health information? Also, what are the challenges for pediatric personal health records? There is little available evidence from a patient perspective to answer these questions.The Markle Foundation (2011) conducts surveys that have reported that consumers want specific privacy policies put in place about their health information, including

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