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The voices of people living with dementia have not been well represented in research resulting in very little data describing their end-of-life experiences. This article describes empirical qualitative data from a study that asked people with Alzheimer's and Huntington's diseases about their experiences of memory loss. Four main themes emerged, which were identified as end-of-life experiences: heredity and family, disabling declines, social changes, and thinking to the future. The discussion frames these experiences with the intention of developing better end-of-life care for people living with dementia. When personhood is respected, dignity at end of life can be part of the experience of dementia. Recommendations for improved care are discussed.
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