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Use the following websites to educate patients about signs and symptoms, treatment options, and patient education resources for scleroderma.


Juvenile Scleroderma Network (JSDN)


The mission of the JSDN is to enhance awareness of juvenile scleroderma and related diseases and provide educational programs to help children and their families gain a better understanding of the disease. This website provides links to an online community of children with scleroderma, information about summer camps, a family outreach center, and an archive of articles about juvenile scleroderma.


National Institute of Arthritis and Musculoskeletal and Skin Diseases


The National Institutes of Health provides this source, which gives detailed information on scleroderma, including what causes it, the different types, how it's diagnosed, possible complications, treatment options, and tips on living with the disease. This website also links to current clinical trials and provides a list of recent articles published in medical journals about scleroderma.


Scleroderma Foundation


This comprehensive website offers resources for patients, caregivers/friends, and healthcare professionals. It provides detailed information on the disease, up-to-date news on treatment and advocacy, lists of support groups, and links to scleroderma clinics across the United States. Patients can find local chapters and resources in their area and volunteer for advocacy programs.


Scleroderma Research Foundation (SRF)


The SRF's website features the latest news and information on scleroderma for both patients and healthcare providers. The patient portal includes FAQs about the disease, tips for living with scleroderma, educational webinars, a list of treatment centers and current clinical trials, and more. Patients can learn about the latest treatments for scleroderma and up-to-date information on the latest research.