Keywords

caregiver, caregiver burden, caregiver role strain, caregiving, disability, functional dependence, ICH, informal caregiver, intracerebral hemorrhage, physical disability, stroke, stroke patient, stroke survivor

 

Authors

  1. Shamoun, Charles
  2. Harris, Margaret A.

Abstract

ABSTRACT: BACKGROUND: Caregiver burden associated with caring for stroke survivors remains a prominent issue in nursing. With stroke being a leading cause of disability worldwide, it is essential that the impact of the stroke survivor's physical disability be analyzed so interventions can be developed to relieve related caregiver burden. The purpose of this systematic review is to review the existing nursing and allied-health literature aimed at the impact of stroke survivors' physical disability on the presence of caregiver burden. METHODS: A systematic review of the CINAHL(R) and PubMed databases was conducted using Preferred Reporting Items for Systematic Reviews and Meta-analyses guidelines (searched on June 16, 2021). Study inclusion criteria for this review were as follows: (1) publication in the last 5 years, (2) examined the impact of stroke survivors' physical disability on caregiver burden, (3) caregiver-survivor dyads 18 years or older, (4) published in English, and (5) longitudinal study designs (an exception for reports that present findings not demonstrated in longitudinal studies). Data extracted from articles included sample characteristics, study design, instruments, analyses, and results. RESULTS: A total of 7 studies met the inclusion criteria and were synthesized for use in this systematic review. These studies implemented a variety of instruments to assess for both physical disability in the stroke patient and caregiver burden. A positive correlation between physical disability and caregiver burden was universally reported. CONCLUSION: Further nursing research is warranted to explore the aspects of physical disability that contribute to caregiver burden and to develop interventions to improve the physical functioning of stroke survivors, include social determinants of health, and specifically address the greatest contributors to caregiver burden.