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Keywords

Alzheimer's disease, dementia, ethics, Heideggerian hermeneutics, narrative lives, phenomenology, thin places, quality of life

 

Authors

  1. Sorrell, Jeanne Merkle PhD, RN, FAAN

Abstract

Healthcare professionals may see prolonging life and use of scarce resources as futile if the quality of life of persons with Alzheimer's disease is deemed to be poor. Thus, nurses and other healthcare providers need to question traditional assumptions of quality of life. This article presents a phenomenological study of ethical concerns related to quality of life as described by persons with Alzheimer's disease, family caregivers, and professional caregivers. The theme of "Creating a Quality of Life Through Connected Lives" calls forth an ethics of respect for the individual experience and its connecting relationships.