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Keywords

Handheld monitoring system, Hemophilia, Management, Record keeping, Wireless

 

Authors

  1. LEONE, JILL R. RN, CCRP

Abstract

Optimal management of hemophilia requires precise monitoring and thorough compliance with prescribed treatment. However, keeping track of these data using traditional paper log books is often challenging for young patients. We conducted a pilot study with 52 patients at three hemophilia treatment centers to determine whether the use of a wireless, handheld monitoring system would improve patients' record keeping and communication with their healthcare team. At the conclusion of the 3-month testing period, surveys completed by all participating patients and clinicians demonstrated that such a device can facilitate and enhance both patient self-management and communication between clinician and patient.