Keywords

adherence, antiretroviral therapy, cultural factors in health care, Haiti, persons living with HIV, qualitative methods, retention in care

 

Authors

  1. Puttkammer, Nancy MPH, PhD
  2. Emmanuel Demes, Joseph Adrien MD, PhD(cand)
  3. Dervis, Witson BA
  4. Chery, Jean Marcxime MA
  5. Elusdort, Josette RN
  6. Haight, Elizabeth MPH
  7. Balan, Jean Gabriel MD
  8. Simoni, Jane M. PhD

Abstract

Abstract: To inform a clinic-based adherence-promotion intervention, this qualitative study applied the Situated Information, Motivation, and Behavioral Skills Model of Care Initiation and Maintenance to elucidate cultural and contextual factors affecting antiretroviral therapy adherence in Haiti. From the 23 focus group discussions with patients (n = 58) and health care workers (n = 57), culturally specific themes emerged relating to Information (e.g., conflicts with allopathic medicine and heuristics about how treatment failure occurs), Motivation (e.g., protecting family members, health and physical appearance, material advantages, and relationships with health workers), and Behavioral Skills (e.g., managing food intake and side effects, navigating health services utilization, accessing medication, and advocating for care needs). Recommendations include: provide therapeutic education on HIV drug resistance; promote the concept of "undetectable = untransmittable"; develop treatment buddy relationships; invest in training and enforcement of patient privacy, transparency, and fairness in access to services and resources; and provide patient-centered behavioral skills counseling.